Friday, 3 April 2015

Teenager Hayley Okines trapped in the body of a 100-year-old due to rare genetic condition dies age 17

Hayley Okines, who suffered a rare genetic condition that gave her the body of a 100-year-old, has died aged 17
A teenager suffering a rare genetic condition that gave her the body of a 100-year-old has died aged 17.
Hayley Okines hit the headlines three years ago when she was part of a documentary about her premature ageing condition.
She suffered from the rare disease progeria which ages the body at eight times the normal rate.

Hayley suffered from the rare disease progeria which ages the body at eight times the normal rateProgeria takes its name from the Greek word 'proeros', meaning prematurely old.
It involves a mutant protein called progerin that accelerates physical ageing. 
There are around 74 known cases of the disease around the world and only 4 in the UK.
A 10 year old progeria child will have the appearance of an octogenarian with symptoms including baldness, arthritis and heart problems, but the mind of a 10 year old.
Progeria patients normally die from heart attacks or strokes at an average age of 13.
But Hayley, from Bexhill, East Sussex, defied the odds to live four more years and even published an autobiography about living with the disease. 
Last night her mother Kerry posted on Facebook: 'My baby girl has gone somewhere better. She took her last breath in my arms at 9.39pm x.'
Today, the Progeria Research Foundation posted on its Facebook page: 'The entire Progeria family mourns together with many as we say goodbye to Hayley Okines, our smart, beautiful and spirited English rose, who passed away today at age 17.
'Gone from our sight, but never our memories, gone from our touch but never our hearts. We will miss you.'
Hayley and her family had fundraised for her medical treatment and to raise public understanding of the condition. 



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